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A life with seizures: Argentine patients’ perspectives about the impact of drug-resistant epilepsy on their lives

Mostrar el registro sencillo del ítem Sarudiansky, Mercedes Korman, Guido Pablo Scevola, Laura Oddo, Silvia Kochen, Silvia D'Alessio, Luciana 2019-03-07T18:36:57Z 2019-03-07T18:36:57Z 2018
dc.identifier.citation Seizure. 2018 Dec;63:52-61. doi: 10.1016/j.seizure.2018.10.008. Epub 2018 Oct 23. es_AR
dc.identifier.other 10.1016/j.seizure.2018.10.008
dc.description Fil: Sarudiansky M. CAEA, CONICET, Buenos Aires, Argentina; Epilepsy Centre, Ramos Mejia and El Cruce Hospital, Argentina; School of Psychology, University of Buenos Aires, Argentina. es_AR
dc.description.abstract PURPOSE: To understand the experience of drug-resistant epilepsy in patients from Argentina, a developing nation. METHOD: A qualitative approach using semi-structured interviews was used to gain an in-depth and contextual understanding of the perspectives of 20 patients with DRE. Data collection and analysis were followed by an inductive and interpretive approach informed by the principles of thematic analysis. RESULTS: Six main themes emerged: 1) Characteristics of the illness, including seizure features -unpredictability, presence of auras, physical and cognitive consequences- and how patients relate with the use of antiepileptic drugs; 2) interactions with health system, regarding the features of the Argentine's health system, and patient's health-seeking behaviours; 3) beliefs about the illness, including psychosocial, biological and folk explanatory models; 4) beliefs about how other people perceive them, which included prejudice, responsibility and overprotection; 5) self-perception, and 6) impact of the illness on their activities. CONCLUSIONS: This information might be useful to help in the development of a conceptual model of the impact epilepsy on patients' lives. Many of the topics mentioned as relevant in Argentina coincide with those highlighted in studies that were carried out in first-world countries. However, additional topics were also reported including the role of traditional healing in health-seeking behaviour and explanatory models of illness. It is important to understand these perspectives to develop appropriate psychosocial interventions for this specific population. es_AR
dc.language.iso en_US es_AR
dc.publisher Seizure es_AR
dc.relation.ispartofseries Seizure;2018 Dec;63:52-61
dc.subject Convulsiones es_AR
dc.subject Seizures es_AR
dc.subject Investigación Cualitativa es_AR
dc.subject Qualitative Research es_AR
dc.subject Argentina es_AR
dc.subject Epilepsia Refractaria es_AR
dc.subject Drug Resistant Epilepsy es_AR
dc.title A life with seizures: Argentine patients’ perspectives about the impact of drug-resistant epilepsy on their lives es_AR
dc.type Article es_AR

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